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protoborg

Re:- Fitness Fruit cakes

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I'll start with a little history.

On the 2nd Dec 03 at about 7pm I had a major off breaking both ankles, right wrist and 3 ribs. After about 8 weeks I went back to work and things got increasingly stressful resulting in a major left side stroke on the 13th Sept 04, about 2 hours after telling my employer where to shove his job. At hospital the head of A&E said to another member of staff that my blood pressure was above levels that normaly kill. The initial total left side paralysis took a long time to recover from. I was cycling a lot as part of the program to regain fitness, not hard pushing but lusually rides of 10 or more miles at a steady pace. On the 17th April 06 I was at Hatfield, about 3 or 4 miles from home and I started feeling light headed so I got off and sat on a garden wall, my vision went and I passed out, no pain involved at all.

After a few days I was moved to the cardiac ward where the consultant ran all the tests he could think of, because although I had a chemical present that only occurs with heart attack there were no signs of heart muscle tear that normlly occurs. After about 5 weeks he said to me " I dont know whats wrong with you, you're the healthiest patient I've got" and so I was referred to a Harefield consultant who sent me for an MRI can at Mount Vernon because the local scanner could not image a moving object. The consultant said the test would'nt find the problem but would eliminate a number of possiblties, in fact it showed the exact problem. I had HOCM, Hypertrophic Obstructive Cardiomyopathy.
http://www.cardiomyopathy.org/images...ions/hfig9.gif
Mine is slightly different in that the swollen muscle obstructs the function of the valves. The other major effect is that the electrical signal that passes through the swelling can be lost without warning and so I was fitted with an ICD (Implanted Cardio Defibrellator), a pacemaker and kickstart device, at Harefield Hospital.

Last year I had a persistant dry cough that went on for about 6 months and eventually in October it got to the point where I couldn't lay down or move because my ribs ached so much, and went in to my local hospital. After a few weeks of tests they found nothing and prescribed strong painkillers to suppress both the pain and the cough. Then on the 16th Nov 07 I had a routine machine check at Harefield where they told me the machine had stopped working and I would have to be admitted. The wires that pass into the heart had a manufacturing defect causing the failure and would have to be removed, a proceedure with a 1 in 10 risk of fatality and a 4 in 10 permanent disability(very scary). Frequently wires are left in when they become obsolete and new one placed along side, but they found a large bacterial growth on the Tricuspid valve which meant they had to come out with the machine. (Aparrently they described the bacteria as a bunch of grapes). There were a lot of complications, but I don't want to write a novel.

So having gone for a 15 minute machine check, I stayed in hospital for 10 weeks and got fitted with a kinky man bra http://www.medgadget.com/archives/img/lifevest.jpg. This allowed me to leave hospital but still have an emergency kickstart while the doctors proved the bacteria had gone.

A new ICD was fitted at the end of April, they tried to put it on the left side but the veins were to knackered to put the the wires in so its on the right and my chest is now looking a bit like a picasso with scar lines all over the place.

At the end of 2006 I qualified to get my driving llicence back and formally asked in March 2007 for itbut between DVLA's incompetence and the complications I'm still waiting ( 27/6/08 )

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  1. DebtMan's Avatar
    You're a pre-hospital nightmare mate ;-) You would scare us half to death... Seriously though, thanks for posting that.

    Mindful of Hawkman's recent piece & something Editor said, reconsider writing up the details of the complications. The human body is remarkably resilient & adaptive, far more than many, possibly most, would give it credit for. A friend of mine was born with transposition of her main arteries & a hole in her heart (not the normal one). She's on her 3rd pacemaker, has had two kids against the not inconsiderable odds & now has AF . . . . all by her early 30s. Its people like you two that make the rest of us realise how lucky we are to be esentially healthy

    A few questions, if you don't mind the inquisition...can you/do you still attribute the stroke to stress?? Do you know the cause of the infection?? And are you awaiting a heart transplant per chance??
  2. protoborg's Avatar
    Quote Originally Posted by DebtMan
    You're a pre-hospital nightmare mate ;-) You would scare us half to death... Seriously though, thanks for posting that.

    Mindful of Hawkman's recent piece & something Editor said, reconsider writing up the details of the complications. The human body is remarkably resilient & adaptive, far more than many, possibly most, would give it credit for. A friend of mine was born with transposition of her main arteries & a hole in her heart (not the normal one). She's on her 3rd pacemaker, has had two kids against the not inconsiderable odds & now has AF . . . . all by her early 30s. Its people like you two that make the rest of us realise how lucky we are to be esentially healthy

    A few questions, if you don't mind the inquisition...can you/do you still attribute the stroke to stress?? Do you know the cause of the infection?? And are you awaiting a heart transplant per chance??
    Sorry for such a late reply.
    The stroke was due to work stress, of that I'm 100% sure. The infection, well when I tried to get answers from the doctors they were very evasive, but I strongly suspect it was introduced during the operation or the wires were infected. Transplant? The condition will progress and the main focus of the treatment is to slow down the degradation as much as possible, so maybe something else will call time.

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